During this Estimates session, I raised questions regarding the management of Lyme Disease. Unfortunately, my concerns appeared to fall on deaf ears. I was repeatedly told the same narrative—that there is no evidence of Lyme Disease existing in Australia—and it was evident that the so-called “experts” had no interest in exploring this issue further.
There was no substantive response to my request for a comprehensive epidemiological study to be done on tick-borne diseases, nor was there any acknowledgment given of the many individuals living with poorly diagnosed and inadequately treated tick-related illnesses.
The remainder of my questions will be submitted on notice, with the hope of receiving detailed and meaningful responses.
— Senate Estimates | December 2025
Transcript
Senator ROBERTS: I’d like to build on questions from earlier tonight and turn to Lyme disease. For several decades, the risk of harm from tick-borne diseases has been recorded, published, reported and presented to the department of health and the ministers’ offices and advisers at the time. Some of this has even been done through the government’s own infectious disease bulletins. Doctors are verifying Lyme disease—we’ve heard that anecdotally—in Australia. I’m going to talk later about epidemiological studies and records that the department has. In the meantime, could you please specify the dates and events when evidence of the harm of tick-borne diseases has been presented to the department and the actions that have been undertaken to protect Australians historically. You can take it on notice if you like.
Ms Quilty: We’ll take that on notice.
Senator ROBERTS: I acknowledge that in 2016 and 2025 we had very limited Senate inquiries into Lyme disease and tick-borne diseases. The terms of reference were very vague and the recommendations were vague. I’m going to ask about the implementation. But at least the term ‘tick-borne diseases’ was recognised. We still don’t know the full extent and the nature of the entire tick-borne disease problem. Why haven’t these tick-borne disease infections been quantified with a study of the population in the form of a human epidemiological study? There are a lot of people suffering.
Senator Green: We’ve answered quite a lot of these questions before.
Senator ROBERTS: Not these exact—
Senator Green: No, but a study has been done. Anyway, I’ll let the officials answer. We’re just going back over—
Senator ROBERTS: Has an epidemiological study been done?
Senator Green: Not one of those types, but—
Ms Quilty: I’m happy to be corrected, but we’ll take that on notice.
Senator ROBERTS: As far as you know, no studies have been done epidemiologically.
Ms Quilty: Not that I’m aware of.
Senator ROBERTS: Why is the Public Health Laboratory Network’s own diagnosis data being ignored with these diseases when they hold the results of thousands of test results for tickborne disease?
Mr Martin: I’m not aware of the data you refer to being withheld. Some of the tickborne diseases are notifiable, and we do collect information on those. I think one of the challenges is that there are a range of conditions which patients believe may be caused by ticks but, as I’ve mentioned in an earlier answer, there’s not necessarily evidence that the pathogen that would cause that disease is present in Australia. I think that it’s challenging to collect information where we don’t have that causal pathway—
Senator ROBERTS: Have you been given or have you collected samples?
Mr Martin: Samples of?
Senator ROBERTS: Infection.
Mr Martin: There are established diagnostic tests for different tickborne diseases.
Mr Comley: I think the evidence that was tendered earlier was that the bacteria that cause the Lyme disease have not been detected in Australia. It’s not that there aren’t people who contract it overseas and come here. There is also evidence that there are other tickborne diseases that are present in Australia, but not Lyme disease—for the bacteria that’s required to be the cause of the disease.
Senator ROBERTS: I’ll say it again: I don’t understand the exact health system, but why is the Public Health Laboratory Network’s own diagnosis data being ignored with these diseases when they hold the results for thousands of tests for tickborne disease? Why is that being an ignored? What’s been done with it? What’s going to be done with it?
Mr Comley: I think we’re struggling to describe which laboratories you are talking about. Can you provide evidence of that. We’re happy to take on notice whether there is any evidence of that effect in Australia. I think the evidence tendered earlier in this estimate session was that there wasn’t such evidence in Australia, but we’re happy to take that on notice.
Senator ROBERTS: I’m told that there is evidence held by the Public Laboratory Network’s own data.
Mr Comley: We’ll take that on notice, unless the CMO would like to comment.
Prof. Kidd: Senator, there is evidence of tickborne infectious diseases that people have contracted in Australia. There are a number of those infections which are recorded, for which people are tested: some of the Rickettsial infections, Queensland tick typhus, Flinders Island spotted fever, Australian spotted fever, Q fever—due to Coxiella burnetii. There’s data on each of these particular tickborne diseases, which will be in our laboratory systems and which are brought together. The issue about Lyme disease—we’ve talked about that before.
Senator ROBERTS: I am told that hospitals have discharge records, with some stating tickborne illness, Lyme disease, Babesia, rickets, Bartonella et cetera, yet accurate and reliable testing for all these diseases in Australia does not occur. Are you able to provide a quantification of this? This is a public health threat.
Prof. Kidd: I think we’ll need to take that on notice from the PHLN.
Senator ROBERTS: I understand. Why can’t the study of this data for all vector-borne diseases—as part of the responsibility of the Department of Health from the 2016 Senate inquiry—be done to complete an epidemiological study? Can you take that on notice?
Ms Quilty: Yes, we have.
Mr Martin: We can. I think it might take me a moment to find it, but I think the government’s response to the most recent inquiry—
Senator ROBERTS: It’s very vague.
Mr Martin: It does go into the feasibility of—it is not feasible, necessarily, to collect data on everyone who may have been bitten by a tick in Australia. We do have a system around notifiable diseases, where that is nationally collected and reported upon for particular pathogens. I can take it on notice and provide further information on some of those practicalities.
Senator ROBERTS: We’ve got readily available tickborne disease testing panels in Australia for livestock and domestic animals, especially for exports, I’m told. We don’t want to hurt people overseas. Veterinarians know that sometimes it’s necessary for animals that are sick with tickborne disease to be put down. The question raised is: are we doing nothing about humans? Are we going to start putting humans down? That’s pretty far-fetched, of course, but I’m saying that there are lots and lots of people who are sick and crippled a bit and nothing seems to be done.
Senator Green: I understand, but perhaps you could put a question to the officials that they can answer for you.
Senator ROBERTS: On my frustration.
Senator Green: You can express your frustration in the Senate chamber next year.
Senator ROBERTS: I don’t have Lyme disease, but I know people who have, and I know people who’ve got tickborne diseases, and there’s been no epidemiological study done. This has been going on for decades.
Senator Green: I understand. There have been inquiries, responses to those inquiries and the officials have answered your questions.
Senator ROBERTS: I know you, Senator Green. You would not be proud of the studies that have been done in the 2016 Senate inquiry.
Senator Green: I’m very aware of the inquiries. I know that a lot of good senators from this place have been involved in those inquiries and have taken evidence from people who are affected, and the government’s responded to those inquiries.
Senator ROBERTS: I say again: why can’t the study of this data for all vector-borne diseases be part of the responsibility of the department of health and be done to complete an epidemiological study? You’ve taken that on notice.
Senator Green: We’ve taken that on notice.
Senator ROBERTS: Thank you. I’m early this time.
CHAIR: You are early this time. I’m very grateful for that. Senator Liddle.
